Saturday, December 19, 2009

Update on the Little Patient

***Update Sunday: Landon isn't going home today - hopefully tomorrow - He is feeling MUCH better, but he still has to make it through the night without oxygen, and it didn't happen last night. He did get his IV disconnected - the stint is still in place, but no more IV tube to trip us up***

Thank you SO much for the thoughts and prayers.

The other grandparents stayed with him last night so that we could catch up on sleep - It's been tough, days a blur - but the toughest time has of course been had by Landon.

We spoke this morning with The other grandfather - Landon is off of oxygen, which is GREAT news - what they need to see is him going through the night without the oxygen, and then that extending through his waking hours - so far, so good. He was still on IV Fluids - but when we left last night he was drinking juice and was more himself than he's been in a few days - fiesty enough to wreak a tangled havoc on all of the tubes...

Anytime a new unknown person walked into his room yesterday. he burst into tears - certain that they were coming to "hurt" him, I guess... the only treatments that he seems to like are the breathing treatments and the "percussions" when a respitory therapist pounds on his back with a little soft cuppy thing to help break up mucous.  The first time we saw that, it was like "Holy Cow! Now they have to beat him, too!" - lol - it looks and sounds like he's getting some stout blows... but the PT took my arm and pounded it with the "precussor" and, yeah, very soft. Whew.


We were called by his new day school on Tuesday because he had a fever and so went and picked him up... he seemed fine, and happy to get a day off - just a slight cough... the fever responded to ibuprofen. On Wednesday morning we took him to his pediatrician, and we were quite shocked that the Dr felt that he either had a slight pneumonia or bronchitis... a stout antibiotic and nebulizer treatments were prescribed (along with rx for pacy) - and signs to watch for that would indicate we bring him back to the office.

Thursday night at 8:30pm, he woke up from a 2 hour nap with fever that didn't respond to medicine, and hiss breathing was labored - we headed for the ER... They took him back immediately. A few hours later we got results that he tested positive for RSV  - According to my research, he doesn't exactly fit the profile of children typically hospitalized - but no one at hospital seemed surprised... They said it is one of the worst cases they have seen :-(
We are headed back to the hospital now - More later. In the montage below - it starts at home with him getting the prescribed breathing treatments after pediatrician visit Wednesday - Our youngest Daughter M has been a life-saver - and beside Landon every step of the way since birth - she plans on being a pulminologist, and was familiar with breathing treatments, etc due to her own asthma... he liked the treatments and even fell asleep during them - Another big support has been our oldest son, "Uncle Bubba" who is a pharmacist and has helped us understand what's going on with the little guy, the treatments, and etc.

Landon is surrounded by love.

10 comments:

Isle Dance said...

(((Bless you all.)))

Madison said...

Incredible. What a cute little guy surrounded by love and care.

pat said...

Scary stuff having a child sick in the hospital. Thanks god for modern medicine. Hoping you all got some well needed rest.

Lou said...

Landon is held by so many loving arms! Please update when he is warm and safe in his own bed.

Mary (MPJ) said...

My thoughts and prayers are with Landon and your whole family.

Annette said...

Two of my kids had RSV and pneumonia as babies... scary stuff. Glad he is on the mend and surrounded by love. Precious little thing.

Fractalmom said...

OM Gosh!! I soooo remember those days! J is 7 now and I don't have to worry about RSV anymore Thank God. She was hospitalized with it 3 times between birth and age 2. They mostly outgrow it after age 2, then it just becomes a nasty cold/brochitis and it is easily treated at home.

I'm glad you have a good crew so Landon is never alone at the hospital. Although nursing staff is always kind and considerate of the littles, there is no substitute for the primary caregivers.

Best wishes and prayers for Landon!

Her Big Sad said...

They look so small amongst all the equipment, don't they? He is indeed surrounded by love!

Prayers continue....

Syd said...

I am glad that he is getting good care and is surrounded by love.

kristi said...

AWww poor guy. My son has had asthma since he was a baby.